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Food Allergies, Something to think about...

Gonz

Ultra Runner
Joined
Mar 18, 2005
Messages
4,843
Location
St. Paul
My 3 year old son has a severe milk allergy, and it always amazes me how little the public really knows about food allergies. About 90 percent of the time when I tell folks that he has a milk allergy they say, "Oh, he's lactose intolerant?". And of course I have to respond, "No, he just stops breathing and will die". They usually look at me funny, and I doubt that folks take me seriously.

So for those who are curious or not sure how serious food allergies can be, here's a nice article I just read this morning:

CNN Food Allergy Article

By Sharona Schwartz
CNN


Caryl Schivley says her son, Brenton, was always very careful about what he ate -- until last September 1, when he was at a friend's house and took a cookie from a bowl on the kitchen table.

"He took a bite of the cookie and he said to his friend, 'I shouldn't have eaten that,'" said his mother. Severely allergic to peanuts, the 16-year-old from western Massachusetts made the dire mistake of not asking about the ingredients. Within minutes he developed a severe allergic reaction to the cookie, which contained peanuts.

Within an hour, he was dead.

"He should have asked [about the ingredients] but he didn't," Caryl Schivley said.

A new study published in the Journal of Allergy and Clinical Immunology suggests Brenton's case may not be unique. Researchers analyzed 31 allergy deaths, finding most who died from food-related reactions were teenagers or young adults and were away from home when they ate the item that killed them. (Interactive: Living with food allergies)

"We were surprised that so few people had gotten correct information about ingredients in restaurant settings, which accounted for about half of these fatal reactions," said study author Anne Muñoz-Furlong, founder and CEO of the Food Allergy and Anaphylaxis Network, a nonprofit advocacy and education group. "The individuals either did not ask about ingredient information -- and assumed the food was safe -- or the restaurant staff gave them incorrect or incomplete information." (Kids and food allergies )

An estimated 12 million Americans suffer from food allergies, and about 150 die every year.

The new study was conducted by researchers at Furlong's organization, National Jewish Medical and Research Center in Denver, Colorado, and Mount Sinai School of Medicine in New York.

Of those who died after accidentally eating the food to which they were allergic, 58 percent were between the ages of 13 and 30. Of the 31 people the study examined, 68 percent had eaten outside of their home, for example at a restaurant, school cafeteria or the home of friends. More than 80 percent of the deaths were caused by peanuts or tree nuts, such as almonds, cashews and pecans. The study also documented four milk-allergic individuals who died after accidental exposure to a dairy containing product and two who had eaten shrimp.

In a food allergy -- unlike intolerance -- the immune system mistakenly identifies a food as being dangerous and reacts acutely against it.

Experts say those with severe food allergies should always carry self-injectable epinephrine, a form of adrenaline usually carried in a small device called an Epipen, in case of accidental ingestion of an offending food. However, the study found that the majority of those who died did not have epinephrine administered in a timely manner.

After eating the cookie, Brenton took an over-the-counter antihistamine but that didn't help. His mother said the Epipen that Brenton normally carried in his backpack was not with him.

Knowing he was in danger, Brenton called his mom. She raced to him with his injectable epinephrine within four minutes, but she estimates at least half an hour had elapsed since he had eaten the cookie. He had collapsed on the sidewalk by the time she was able to administer the epinephrine. "We called the ambulance and they could never revive him," his mom said.

The "sooner these reactions can be treated with epinephrine, the more likely you are to have a good outcome," said Dr. Hugh Sampson, director of the Jaffe Food Allergy Institute at New York's Mount Sinai School of Medicine, and a study co-author.

Sampson likens an allergic reaction to a "snowball coming down a mountain." At the top of mountain it's small "but by the time it gets to the bottom of the mountain it becomes huge."

For those with food allergies, vigilance about food preparation is essential to staying safe. "The extra challenge for teens with food allergies is that they need to be careful about every food that goes into their mouth or into the mouth of someone they're going to kiss and yet the driving force for teens is to be like everyone else and to be very social," Muñoz-Furlong said. "When they're younger, parents are more involved" in their children's daily activities, says Brenton's mother, Caryl Schivley. But as teenagers, "they don't want to make a spectacle of themselves."

Most of those who died that the new study documented had asthma in addition to their food allergy.

The study found that many who died had not needed prescribed medication for previous reactions. Some did not even know that food-induced allergic reactions could be fatal.

The research team in 2001 reported on a previous group of 32 individuals who had died because of food-induced anaphylaxis, and reviewed medical literature in the United States and internationally in order to try to determine the similarities or differences in the factors that led to the fatalities.

"What was most heartbreaking," said Muñoz-Furlong, "is that the story repeats itself over and over again and the fact that these deaths are preventable."
 
Sobering, Andy. Thanks for bringing this to our attention.

My daughter Miranda has a moderate peanut allergy and she has been conditioned to always ask if there are any nuts in cookies and snacks she has at friends' houses. One time we gave her a sweet bun that had peanut in it and her lips swelled up instantly. It was not life threatening and we could treat it with Benadryl but still, it was shocking to see. It broke my heart to see her struggling to drink down water and the medicine with her lips grotesque swelled up.

There is no feeling of powerlessness like that a parent feels when he can't help RIGHT AWAY.Wilkey
 
For 10 years of my life, I was allergic to every thing and yes, I faced death many many times between the time I was born and till I was around 12 yo. Hell, my parents refrig door was nothing but allergy medicine and the hospital gave my parents a medical card for me. If they showed up at a ER and gave them that card, I was in the hospital immediately. No waiting around. They trained them how to give me shots and some other stuff in case of a bad scenario. All I can remember was receiving like 8 shots a week for a very long time which wasn't fun. Thus, needles don't bother me any more.

When I was around 12 yo was when I finally grew out of my allergies mostly and yes, you never fully get rid of them. Unfortunately, as I have gotten older, others have made an appearance and being allergic to dairy and cheese is one of them. My friend gave me 2 Gold Fish crackers while in College and didn't even think to tell me they had cheddar in it. They nearly killed me and lucky me, I'm allergic to Benadryl. So you can imagine how safe I have to be. :laugh: But one of my Doctor's gave me some wonderful advice once. He told me to just eat a small amount of dairy whether it was milk, cheese, or ice cream very carefully, I could lesson the allergic reaction. So I have been since 1998 doing what he told me too and have lessened the allergic reaction so I can eat a little variety that I couldn't before. Still to this day I can not eat cheese that's been cooked aka cheese on pizza as a prime example. I still can't eat many cheeses that is cold but at least if I get some in my system, I stand a better chance now than I did for most of my life. :)
 
Andy if it's any consolation, my youngest, (Taran) had a very bad milk allergy, along with cheese and almost anything dairy when he was a toddler to about 8. But then he grew out of it and can eat any of it now in any quantity. So hopefully your son will grow out of it as well.
 
Yeah, these severe allergies make life really tough...I hope your son grows out of it.
 
When I worked at the deli, we had a couple that came in for cold cuts for their kids. They had severe allergies of some kind, but never knew exactly what. They'd always call ahead before coming in, and came towards the end of the day because we would have to completely clean the machines for their order before we could do anything.

I felt bad for them, but did everything I could to make sure they had no problems with their order.
 
Oh yeah before I forget. You can develop allergies at any time so just remember when you are pounding down cheese like its going out of style that you can actually make yourself allergic to it. My brother found out the hard way as he ate a ton of cheese and drank tons of milk. One day he got really sick and the doctor told him he developed an allergy and this was diagnosed when he was 36. I did warn him in advance and he never listened to me. :(
 
Having worked in restaurants and bars for the last 8 years, I'm used to hearing "I'm allergic to _____ ." Please make sure your server/bartender knows you're serious. Too many times I have seen other workers come back to the kitchen and realize they forgot to ring something in the right way, so they just pull off whatever it is. I've called people out on it numerous times, but we're not always around.

It seems that people who just don't like onions and say "I'm allergic..." have de-sensitized restaurant employees everywhere. Now it's common for people to laugh in the kitchen and not believe everyone who wants something "your way right away!" Make sure you command the attention of your server/bartender when ordering. Even say "It's not that I don't like ____ , it's that I'm very allergic." It's a shame you have to go out of your way to be taken seriously sometimes, but you gotta do what you gotta do!
 
Having worked in restaurants and bars for the last 8 years, I'm used to hearing "I'm allergic to _____ ." Please make sure your server/bartender knows you're serious. Too many times I have seen other workers come back to the kitchen and realize they forgot to ring something in the right way, so they just pull off whatever it is. I've called people out on it numerous times, but we're not always around.

It seems that people who just don't like onions and say "I'm allergic..." have de-sensitized restaurant employees everywhere. Now it's common for people to laugh in the kitchen and not believe everyone who wants something "your way right away!" Make sure you command the attention of your server/bartender when ordering. Even say "It's not that I don't like ____ , it's that I'm very allergic." It's a shame you have to go out of your way to be taken seriously sometimes, but you gotta do what you gotta do!


This is the case for us often with our son. We'll tell the waiter/waitress that our son has a milk allergy so no cheese on the Hamburger. Then they bring out a bun toasted in butter! Or we say to leave the parmasan off the pasta, and they bring butter/garlic bread on the side! Of course the best (and a learning experience for us) was when some kid working at the take and bake pizza place told us that the Feta cheese was goat's milk, so that would be OK for our son with the milk allergy. Well, first off he was wrong, it was cow's milk cheese, and second, the sauce is loaded with parm!
 
"some kid working at the take and bake pizza place told us..."

Why do people like that even open their mouth? I haven't much room for ignorance when all it takes is a little time and effort to find the answer. All they have to do is ask someone and they'll give them the answer or direct them on where to find it. :angry: I guess it's just too much to ask some people.
 
Should see me scramble when I go to a foreign country and I have to know the right words to say no cheese and dairy. Its a blast but its a life saver. Last bad experience I had was a couple of years ago when a bunch of Home brewers in the KC area went to O'Fallons. I told the guys that I'm allergic to cheese and dairy. Someone made this killer salad that was yummy so i ate a truckload of it and had been drinking a lot of beer. Well...the alcohol sped up the reaction and I purged it all out of the mouth and felt like I was ran over by a truck. So I asked them what was in the salad and they said feta cheese. :sign:
 
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